Learning disabilities

Informed consent

As defined by the Law Society Informed Consent is: ‘an individual is always presumed to be competent, or to have mental capacity to enter into a particular transaction, until the contrary is proved.’ (Law Society – BMA 1995).  No one can consent to or refuse treatment on behalf of another adult who lacks capacity to consent. Parents cannot consent on behalf of their adult children, no matter what level their learning disability is.

Waiving of consent

Consent can only be waived under certain conditions:       

• To preserve life, health or well being of the person e.g. in A&E for emergency situations
• If the patient is being held under the Mental Health Act
• It is agreed during a formal ‘Best Interests’ meeting which is a multidisciplinary meeting including all professionals/ carers/family/patient involved in the care of the patient. At this meeting the professionals will decide whether a particular intervention was in accordance with best practice.      

Any intervention carries out without the individual’s consent outside the above definitions, constitutes a civil or criminal assault, even if intended to benefit the patient.

Capacity to consent

The ability to give informed consent must involve an understandable explanation of:

• What will happen and why it is necessary in very simple terms
• The benefits and risks of the treatment and what alternatives are available
• What will happen if the patient does not consent
• Being able to retain what you have discussed with them and able to make a decision

Patients must not coerced into making decisions because the assessor believes the patient should have treatment.

Capacity can be temporary or permanent and in some circumstances it may fluctuate.     

• Temporary factors such as psychosis, shock, depression, taking illegal drugs or alcohol and com can affect capacity
• Permanent factors such as cognitive impairment through vascular dementia, Parkinson’s disease and brain injury

Remember!

Patients can withdraw consent at any time.

How to assess capacity

In order to assess capacity it is essential to: 

• Elicit what skills or knowledge the patient may require to exercise capacity
• Find out what support and information the patient requires to achieve capacity
• Involve someone who knows the patient well and their level of communication

This must be patient centred and reviewed on a daily basis as part of their care plan.

Best interests

Some people will never be able to make one or any decisions and judgement must not be made until all practicable steps have been taken to help the patient.

In law an adult unable to make a health decision can receive treatment that is common practice and used by the appropriately trained medical practitioner and that it is in the best interests of the patient.

The final responsibility for making sure the treatment plan for the patient lies with the health professional carrying out the procedure e.g. doctor, nurse, physiotherapist etc. 

However, it is good practice to consult with people close to the patient to gain agreement unless:   

• There is a good reason to believe the person would not wish those people to be consulted
• The urgency of the situation

It is important to remember that best interests are not just about best ‘medical’ interests. It also includes a patient’s wishes, beliefs, general being, personal relationships with others, spiritual and religious needs.

Where controversial circumstances are involved decisions around best interests should be made via the court.

The Good Health Group looks at ways to improve access to health information, health checks and Health Action Plans and to improve the health of people with learning disabilities. This is a public Group open to anyone to attend.

http://www.kentldpb.org.uk/delivery_groups/4-good-health/index.php

North Kent Independent Advocacy Scheme got the Valuing People Now contract.

The Easy Read group of the scheme is working with the Learning Disability Liaison to make information more accessible to people with learning disabilities needing to use the Trust.        

The scheme kindly funded the Trust Banner Pens providing guidance to staff on how to assess mental capacity and how to support people with a learning disability in the NHS.

Contact: www.nkias.co.uk

• Easy Read Epilepsy Information for People with a Learning Disability

• Easy Health Website: http://www.easyhealth.org.uk/

• Getting to Know You - Easy Read Leaflet
• Going into hospital with a learning disability: www.nhs.uk/Livewell/Childrenwithalearningdisability/Pages/Going-into-hospital-with-learning-disability.aspx
• Outpatient Appointment Easy Read Leaflet
• People with learning disabilities: making reasonable adjustments: www.gov.uk/government/publications/reasonable-adjustments-for-people-with-learning-disabilities 
• Mencap: www.mencap.org.uk 
• North Kent Independent Advocacy Scheme: Tel: 0788 6104109 or Email: louise.flatman@nkias.co.uk

• Deprivation of Liberty Safeguards: https://www.osab.co.uk/wp-content/uploads/mental-capacity-act-2005-guide-for-family.pdf

• Autism Support Line